Wednesday, April 13, 2011

Busy Busy Busy

I can't believe how busy I've been for a sick person.  I just saw the last round of specialists: a neurologist and a rheumatologist.  I am now making the rounds of practitioners that are trying to help me feel better.  So, lots of appointments.

I'm also trying to get everything together to send off to the lawyer for my LTD appeal.  This is a paperwork nightmare.  Of course I keep forgetting to give release letters to doctors or not getting the correct information from their files.  Hazards of leaving medical care to a sick person.

I've decided I need a medical advocate that will also drive me to appointments.  Any volunteers??

I've also started to do some advocacy work.  I've participated in emails to representatives regarding the budget cuts.  I'm in the middle of preparing a statement for the CFS Advisory Committee meeting next month.  I would love to videotape it.  I'm not sure I'll get my crap together to do that in time but I think it would be better read aloud than written.  I need to check to see if videos can be submitted.

Of course all I really want to do is lie in bed and read.  I'm exhausted.  I've crashed this week due to girl stuff.  It used to crash me when I was well now it brings me to my knees.  Talking of that.  I'm going to bed.


  1. Take care of yourself and don't overdo it! Rest until you feel better!