It is official. I have Chronic Fatigue Syndrome. I saw my cool new doctor today. He is half regular medicine half holistic doctor. He went through the CDC criteria with me and we decided together that I had CFS. I've known this since last year I've just never had a doc that was willing to admit it, particularly in writing. He just looked at me and said that I have all of the symptoms used to diagnose it and also many of the CDC 'extras' (symptoms that are common with CFS but not used to diagnose it).
He is tweaking my supplement list. He said that my chiropractor did good putting me on the FM supplement protocol. Between my supplements and meds I have not gotten as sick as most of the CFS patients he normally sees.
He is also having me consult with an infusion specialist at the same center. This means I have to make the one hour trek back the office in a week and a half. I also have to pay out of pocket for any IV treatment I decide to go forward with since insurance doesn't pay for any of it. Since I've heard good things about this from other patients I'm willing to give it a go.
I started to write, "Awesome News" and then caught myself. That doesn't really work. I'm glad you finally have a diagnosis. I was just thinking about when you might be able to find out about whether or not you have ME or not.
ReplyDeleteI'm glad you have such great medical coverage. That is helpful and nice. I sometimes wish I had much better healthcare but it is what it is.
Now maybe with the new regime you can find a place of 'normal' for you in this illness.
Um...congratulations? That doesn't seem quite right, but I know there is relief in having your diagnosis formalized. I'm thrilled that you have found a compassionate, knowledgeable doctor you can trust and work with!
ReplyDeleteI know of several CFS docs who use IV infusions for their patients - hope it works for you.
Sue