Wednesday, March 16, 2011

Turning Point

I am crossing my finger and hoping that this post doesn't jinx things but I think my medical care might have just taken a turn for the better.  I visited my primary today and he is going to try several things to help me out. 
  • He is writing me a letter for my SSD case stating that I'm too sick to work and also the plans for future treatment. 
  • He gave me some samples of one of my meds after he found out I no longer have prescription coverage so I don't have to pay for so many pills.  The med I'm on is $5 a pill!  Ugh! 
  • He is loath to put me on antidepressants because, in his words "you have a reactive depression" (translation: you're bummed out cuz you're ill) and you are having bad reactions to medications.  So another talk with my shrink but I think meds are going to be off the table for the immediate future. 
  • He is going to contact the MDVIP centers of excellence and see if he can hook up with someone at Mayo or Cleveland to help him with my diagnosis and treatment. 
  • He is also putting together a packet of information to send to Dr. Anthony Karmoroff.  Yes, The Dr. Karmoroff!  One of the most well known CFS docs on the planet!  Turns out he is taking new patients.  Not sure when I'll actually get to see him and I have to go through a screening process first.  But hey, my doc is willing to give this a try!
Even though I'm still cooked from this weird crash I'm happy again.  I have some small smidgen of hope that someone out there will help me or at least listen to me and take me seriously.  I didn't realize how much the blows from the rheumatologist and the neuropsych testing had hurt me.  How can I let these people affect me so much?  I don't think they realize how much they are screwing with people's lives.  I'm so sick that I just spent the last three days asleep in bed and both of these people said that they didn't see why I shouldn't be able to work.  Okay.  I'm still pissed off about that.  This was supposed to be a happy post.

I'm feeling so much better this evening mood wise.  I'm still baked.  I still can't think straight.  I'm still so tired my vision is blurred.  But I have hope again.  Maybe things will start improving.  I'm also looking forward to seeing my new doc at the Marino Center.  I should be getting a follow up with him soon.  Yay!

1 comment:

  1. Hurray!! I'm so happy for you! Sounds like some great avenues of hope.

    BTW, just FYI...anti-depressants are often used or CFS patients NOT for depression but for correcting sleep dysfunction - they're used in much smaller doses for this purpose and often work very effectively to make sleep feel normal again. They've worked great for my son and I.

    You deserve this good turn of events!!